I want to be like Rayne Stewart when I grow up. Rayne is one of the many Americans suffering from Vitiligo, a non-curable condition causing discoloration and the loss of pigment in skin cells. Vitiligo affects nearly 50 million humans worldwide, and as many as 5 million citizens of the United States. It can be associated with other side effects such as psychological stress and hair discoloration.
Rayne was only 8 years old when she was diagnosed. In addition to the stress of the loss of her favorite aunt to ALS, and grandfather to cancer, Rayne suffered emotionally with fears and feelings of inadequacy, and being bullied in school. After moving to Loch Raven, Baltimore, Maryland at the start of 7th grade, and with the help of a close family friend, Rayne decided she was done trying to fit into the mold, and began embracing her Vitiligo. “I started looking at it as something that makes me unique,” she said.
Now only 14 years young, Rayne is a vitiligo warrior and using her voice to change the way children (and adults) who suffer from the condition view themselves. “I don’t mind the questions, and I understand the stares, because I know being different is not a bad thing,” she explained. Rayne has graced numerous schools, conventions, panels and communities with her rendition of self-acceptance. She even went on to write a children’s book called, Perfectly Different, which explains Rayne’s journey with vitiligo.
Rayne realized she wanted to write a book after seeing her cousin release a book series a few years ago. It took her 1 year but she wrote it, in it’s entirety, by herself; and, has sold over 300 books so far! Rayne admits she still suffers from body acceptance in some ways, but overall is thrilled with the progress she’s made and feedback she gets from people, especially children, who have read the book.
With current dreams of Broadway stardom, and one day meeting Ellen, Rayne continues to use her voice to empower others. The ninth grader is even considering a new book about transitioning from middle school to high school. Rayne’s story is different, and her influence is powerful. Her courage to share her story at such a young age is it only selfless, but also empowering. Because of this young queen, more people are learning to love the beauty in being perfectly different. Ya girl is HERE.FOR.IT!